Anonymous asked: Link to your videos ??? Ps love you and your blog ❤❤❤❤
thank you :) i was literally just about to delete my tumblr account so thank you, thank you, thank you :)
Anonymous asked: How do you have energy to make videos but not to go on Tumblr if you don't mind me asking?
Okay, first off, I do mind. My life, my illness, my choices.
Secondly the two are like chalk & cheese. I can spend say 2 hrs on tumblr & have used up most of my spoons without realising it & feel like I have achieved less than nothing or I can, over the period of 3-4 days film & edit a video, using up maybe a quarter of my daily spoons, & then feel like I have achieved loads. Making videos helps me stay positive. It means I still feel like I am actually doing something & not that I am a waste of space & so I am happy to use my spoons in this way. Tumblr however is, for me, a black hole for spoons which gives very little back.
There must be acid
Or nails in my bones because
Holy fucking shit
My limbs feel bruised, bent, broken and swollen.
YET THEY LOOK PERFECTLY NORMAL
It is hard to look at a part of you that is in agony, with no sign it is there.
This sums it up perfectly…
yes, this! I also have an internal tremor, so it will feel like I am fucking SHAKING, but when I look down there is only a slight movement. It is really disorienting sometimes.
Anonymous asked: Why have you stopped posting
I’ve been flaring really badly and for some reason tumblr is more tiring than anything else I do….x
Tried not to die.
Will try again tomorrow.
Anonymous asked: did you get a motorised scooter then?
no, my mum managed to talk her out of it, thank God :)